I guess it really does help to know someone who knows someone, who knows someone.
We have our appointment Monday at Children's Hospital in Houston to get a second opinion from a pedi-neuro-oncologist. It's at 9:50. This is the appointment that my Ft. Worth specialist set up.
However---- I'd also talked with a friend who works at M.D. Anderson cancer hospital- which is across the street from Children's. She spoke with a few people and got me the name of the patient coordinator for pedi- oncology. I sent my friend Liam's MRI and she dropped it off with the head of pedi-neuro-oncology. When I called to speak with the patient coordinator, she was basically waiting on my phone call. She knew all about Liam and our situation already. It was impressive to say the least. Then, they truly bent over backwards to accommodate the fact that we were traveling in from out of town. They gave Liam an appointment later than they typically ever schedule appointments. (Usually the last one scheduled is at 10:30- which we obviously couldn't make, so Liam got an 11:30 time slot and the request to "please be there as soon as possible". )
How awesome is that? I know know that pediatric oncologists are the nicest doctors that exist- but I'm so sad I had to find out this way.
So now, we not only have the Children's appointment on Monday, but I have an M.D Anderson appointment with both a neuro-oncologist and neuro-surgeon. Wow. Hopefully we get some positive views on Liam's case in Houston! Wish us luck and keep us in your prayers please.