Liam is such a special little guy and to have so many people thinking of him and praying for him really means a lot. I got cards in the mail, emails, facebook messages, text messages, and phone calls; all saying how people were with us in thought and prayer. All hoping and believing that Liam would end up ok.
Thank you, thank you, thank you. And....... I really believe that he will be ok. I still find myself praying every moment I have of silence- "please God don't let it grow" seems to be my mantra lately.
I also have a lot of people telling me how strong I am. I don't feel strong. I feel helpless and small. I haven't cried myself to sleep since our follow-up so there's an improvement at least. I try to keep day to day exactly the same so Liam doesn't know anything has changed. He's back to sleeping well which is so much better than the waking up 6 times at night that he was doing right after the diagnosis. I think he could sense our stress and that really disrupted him.
We have a neurology appointment tomorrow- this is to look for any signs of neurological involvement with the tumor. The theory is we monitor for tiny changes- if any are noted we do another MRI right away. Hopefully, tomorrow's appointment will be totally uneventful as will be all the follow-ups we will have in the future.
Well that's it for today. Nothing really big. Nothing really important. Just wanted to say thank you for all your support. Thanks for helping God hear us down here on our little clover flower.
and if you got this far:
Isn't he the sweetest thing ever??