Tuesday, June 4, 2013

To my "Who" army--

Wow! We really got such and outpouring of love and support from everyone.

Liam is such a special little guy and to have so many people thinking of him and praying for him really means a lot.  I got cards in the mail, emails, facebook messages, text messages, and phone calls; all saying how people were with us in thought and prayer.  All hoping and believing that Liam would end up ok.

Thank you, thank you, thank you. And....... I really believe that he will be ok.  I still find myself praying every moment I have of silence- "please God don't let it grow" seems to be my mantra lately.

I also have a lot of people telling me how strong I am.  I don't feel strong.  I feel helpless and small.  I haven't cried myself to sleep since our follow-up so there's an improvement at least.   I try to keep day to day exactly the same so Liam doesn't know anything has changed.  He's back to sleeping well which is so much better than the waking up 6 times at night that he was doing right after the diagnosis.  I think he could sense our stress and that really disrupted him.

We have a neurology appointment tomorrow- this is to look for any signs of neurological involvement with the tumor.  The theory is we monitor for tiny changes- if any are noted we do another MRI right away.  Hopefully, tomorrow's appointment will be totally uneventful as will be all the follow-ups we will have in the future.

Well that's it for today.  Nothing really big.  Nothing really important.  Just wanted to say thank you for all your support.  Thanks for helping God hear us down here on our little clover flower.

-- Jamie

and if you got this far:

Isn't he the sweetest thing ever??  


  1. Liam is so adorable!! I see pictures of him every time I go to the Ahler's farm. They are so proud of him and you. Our thoughts and prayers are with you guys!

    Mark and Michelle Diehl

  2. Yes! He IS the sweetest thing ever! Hugs to all of you!

    1. Aww thank you! He certainly is keeping us very busy!

  3. Jamie I want you to know that I am keeping up with your blog and I pray everything turns out for the best. I found out that first day and I cried and I couldn't believe it was happening to your little liam. He is such a wonderful little man. If you need to vent or tlk I'm here and I wish you all the luck in the world j-dawg. And know I'm one of those whos that are screaming and yelling at the top of my lungs. I love you girl keep you head up. And you are strong don't ever think you aren't.

    1. Thanks C-Dice! We miss you around here!